[1] Introduction
Nystagmus is an eye condition where the eyes move involuntarily, often drifting slowly in one direction or another, then correcting themselves with a quick movement. It is often present from birth ("congenital" or "infantile"), but can also be acquired later in life. Although it is not the best-known eye condition, it can have significant effects on the life of those who have it, including compromising their ability to drive a vehicle, limiting the work they are able to do and making the world a blurry place. There is research going on into medication, surgery and gene therapy that may help, but all of this seems to be in a very early stage. I am not a medic - my interest is purely from the point of view of someone who has this condition. It is important that you consult with an eye specialist if you suspect that you have this or any other serious eye condition.
Nystagmus is not so much a disease in its own right, but more a sign of something else going on. It can be associated with other conditions that affect the eyes (e.g., albinism), but is not always so. It can also be associated with various forms of nerve damage. There seems to be a genetic component for some people. Sometimes a doctor may use the rather unelpful term, "idiopathic", which means "we don't knowwhat caused it".
The Greek word νυσταγμός (nystagmós) derives from νυστάζειν (nystadzein, to nod off). The Latin equivalent is nutare, "to nod", which turns up in a condition called spasmus nutans, where the person's whole head nods, and where nystagmus is also a feature. The nodding off reference is associated also with people being drunk. Unfortunately, this still has resonance when occasionally someone will be accused of drunk driving, whereas it is only their eyes that are misbehaving.
[3] Nystagmus Links
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A behavioral optometry/vision science perspective on the horizontal gaze nystagmus exam for DUI enforcement - this article is supposed to be clearing up various myths about horizontal gaze nystagmus, but upholds the myth that the only cause of HGN is the influence of drink/drugs. For a Maryland attorney's views on using junk science in court, see
Maryland bars HGN evidence without expert testimony
a model-based theory on the origin of downbeat nystagmus
A molecular-genetic study of Congenital Nystagmus - University of Southampton,(UK) School of Medicine, Doctoral Thesis by Jay Self. 226 pages, downloadable as PDF document.
a Review of the Tenotomy Nystagmus Surgery: Origin, Mechanism, and General Efficacy - Neuro-Ophthalmology
Achromatopsia Support
Some resources for this condition, which is a failure of the cones in the eye, and always appears to have nystagmus as a side-effect. Other symptoms include difficulty in bright light and partial or total colour blindness.
Achromatopsia News Feeds
Sorry, I have had to remove OPML files to save bandwidth on this site. I will include achromatopsia RSS feeds again as soon as I can.
Akron Children's Hospital - Replay of Horizontal Tenotomy: A Treatment for Congenital Nystagmus - webcast.
Albinism
Albinism is associated with a number of conditions that cause visual impairment, nystagmus included.
All Children Have Different Eyes available from the Low Vision Children's Book Store. Aimed at children aged 4 to 8 with visual impairments, their friends, teachers, parents, ophthalmologists and so on. ISBN 13: 978-1-934561-15-7
American Nystagmus Network - many resources, including a mailing list, booklist, links to other sites, conference proceedings. They are careful to say that this is a site for people with nystagmus and those who care about them, rather than being a medical resource.
American Nystagmus Network Yahoo! group (ann-list)
Aniridia Network International - About aniridia - Nystagmus
Arnold-Chiari malformation and nystagmus of skew -- Pieh and Gottlob 69 (1): 124 -- Journal of Neurology, Neurosurgery, and Psychiatry
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BBC News: Eye disease scan 'lights up brain' - this page, now 7 years old, describes the use of MRI brain scans to track what happens in the brain when people see. The technique was being used to learn more about nystagmus, amongst other things.
BBC News: Victorian workers' ills persist today - but miners' nystagmus is a thing of the past (only, presumably, because the mines have shut down!).
Breakthrough In Eye Disease - researchers at Leicester University seem to have discovered a gene implicated in nystagmus.
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Causes of Hydrocephalus - a condition associated with vertical nystagmus. This was a GeoCities site, but is now held in a web archive since GeoCities has closed.
Chiari Malformation
Combining recessions (nystagmus and strabismus) with tenotomy improved visual function and decreased oscillopsia and diplopia in acquired downbeat nystagmus and in horizontal infantile nystagmus syndrome.
Common cases in nystagmus -diagnosing nystagmus.
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DailyStrength Nystagmus Support Group - "Free, anonymous support from people just like you."
Does Botulinum Toxin Have a Role in the Treatment of Oscillopsia? - Neuro-Ophthalmology - moorfields eye Hospital, London, evaluated treatments for this condition which arises from acquired nystagmus.
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Electronystagmogram (ENG) - this instrument measures movements of the eyes, and how they are communicating with the brain.
Em guidemap - Nystagmus, Acquired
eMedicine - Nystagmus, Acquired : Article by Christopher M Bardorf, MD, MS
ExperienceProject Search for nystagmus - several groups where people can share their stories.
Extraocular Muscle Surgery Improves Vision in Patients With Nystagmus - Medscape
EyeNet, How to Assess and Treat Infantile Nystagmus - this is a site for USA eye care specialists.
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Facebook Groups
Factors influencing pursuit ability in infantile nystagmus syndrome: Target timing and foveation capability
Forensic-Evidence: Biological Evidence - H.G.N. (Horizontal Gaze Nystagmus) - sobriety tests for drivers include observation of horizontal gaze because it is known that alcohol adversely affects the tracking ability of the eyes.
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Hereditary nystagmus in early childhood. - presented as 4 scanned pages (graphical format). PDF supposedly available, but not found.
horizontal gaze nystagmus
Horizontal Tenotomy: - A Treatment for congenital (now usually known as Infantile) nystagmus.
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Illinois Supreme Court Takes a Sober Look at DUI Evidence - the field sobriety tests used on drivers suspected of being drunk turn out to be not so reliable.
Indie Film Review: ‘The Big Shot Caller’ in which the protagonist has nystagmus.
Institute of Optometry research study - the results of a 3-yhear study using vision therapy.
[Video] Introduction to Eye Muscle Surgery: Expanding the Treatment for Nystagmus in Infancy and Childhood - ORLive, Inc. - Richard Hertle, M.D., ophthalmologist, akron Children's Hospital, explains some fundamentals.
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LOOK - support for UK parents who have a visually impaired child.
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Manifest Strabismus Nystagmus of Infant Resolved in 3 weeks 02/01/08 |BioMagnetic Science
MDJunction Nystagmus Support Group
Discussions RSS Feed
Medicine Decoded - Nystagmus Decoded. Leads to a PDF file and some animations illustrating nystagmus.
MedlinePlus Medical Encyclopedia: Eye movements - uncontrollable
MS: Vision Issues 2 of 2 - nystagmus is one of the possible consequences of having multiple sclerosis.
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Nystagmus - A Guide - AllAboutVision.com
Nystagmus - definition in the free online Medical dictionary, Thesaurus and Encyclopedia.
Nystagmus - Justmommies Forums
Nystagmus - part of a site about various eye conditions.
Nystagmus - Symptoms, Treatment and Prevention
Nystagmus - Wikipedia
Nystagmus and Driving
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Nystagmus and driving
Nystagmus and neck movement - movements may be restricted for some nystagmus subjects.
Nystagmus Awareness Shop - profits from the merchandise here go to the American Nystagmus Netowrk.
Nystagmus evaluation from TinHall's Emergency Medicine
Nystagmus following acupuncture—a case report - one woman temporarily experienced nystagmus after a needle treatment. Inconclusive.
Nystagmus for Teenagers - information from the RNIB, UK
Nystagmus Network - Nystagmus Network is a UK charity that provides support, information and fosters research for those with nystagmus, parents and teachers. Includes
Research,
Shop,
Forum
Nystagmus on patient.co.uk
Nystagmus secondary to drug exposure in utero -- Mulvihill et al. 91 (5): 613 -- British Journal of Ophthalmology
Nystagmus Support Group - " A community of patients, family members and friends dedicated to dealing with Nystagmus, together." - one of the MDJunction support groups on health challenges.
Nystagmus training, courses, lectures and seminars - John Sanders answers the growing need for training in the UK. Contact him on
[email protected]
Nystagmus wiki on WikiSpaces
Nystagmus, Congenital: Overview - eMedicine Ophthalmology
[Dutch] Nystagmus, trillende, wiebel ogen (folder Oogartsen.nl)
Nystagmus.co.uk - real life experiences, background information, forum
[German] Nystagmus.de - Deutsches Forum Nystagmus.
nystagmus: Definition from Answers.com
Nystagmus: Definition(s) from the Unified Medical Language System ® Diseases Database
Nystagmus: Overlooked Causes and Treatments
Nystagmus types and treatments
[German] Nystagmusbrille
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Ocular torticollis.
OMLAB - Education - refers to a number of papers about nystagmus, particularly the infantile variety (INS).
[Dutch/Flemish] ORL-NKO.BE: aanbevelingen voor het onderzoek
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Paroxysmal Tonic Upgaze eye rolling developmental delay nystagmus ataxia child
Pathologic nystagmus - Wikipedia
Periodic alternating nystagmus
Performing and Nystagmus - does nystagmus affect your ability in performing arts?
Physiologic nystagmus - Wikipedia, the free encyclopedia
Podcast: Treatment for Congenital Nystagmus
Pubmed search for Nystagmus
RSS Feed
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Relation between foveation and sensory function after nystagmus surgery in children - 4-muscle surgery has been found to increase visual acuity as well as stabilise movements.
Richard W. Hertle, MD - UPMC | University of Pittsburgh Medical Center
Rotary_Nystagmus
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Social and visual function in nystagmus - the results of a survey carried out by the UK Nystagmus Network.
Spasmus nutans or congenital nystagmus? Classification according to objective criteria.
Square wave jerk nystagmus
Standardized field sobriety tests,SFST, Psychophysical,balance, Drunk Driving, Alcohol, Operating under the influence of an alcohol beverage,defense driving while intoxicated,divided attention,walk and turn,one leg stand,horizontal gaze nystagmus
Surgical management of nystagmus
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Ten Things Most Lawyers Don’t Know About Horizontal Gaze Nystagmus Field Sobriety Tests
Tenotomy of horizontal eye muscles for nystagmus (with reattachment at their original insertions - the NICE (UK) guidelines. The conclusions of this document seem to be quite contentious among practitioners. See, for example,
A Review of the Tenotomy Nystagmus Surgery: Origin, Mechanism, and General Efficacy - Neuro-Ophthalmology
The Dr. Bill Takeshita Foundation : Main / Nystagmus : browse
The prevalence of nystagmus: The Leicestershire nystagmus survey
[PDF] The Robustness of the Horizontal Gaze Nystagmus Test published by the US Dept. of Transportation.
The Shifty Eyes Blog - A Blog about Life with Nystagmus
RSS Feed
The temporal impulse response function in infantile nystagmus
TheVisionCommunity.com
Tiresias :: ICT accessibility :: User groups :: Nystagmus - description, symptoms, effects on everyday life, relevant organisations.
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Understanding nystagmus - web version of RNIB leaflet.
Understanding Nystagmus
Understanding Nystagmus by Drs. Richard & Laura Windsor - Vision World ...
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vertical nystagmus - Patient UK resources
Vibration-induced nystagmus as an office procedure for the diagnosis of superior semicircular canal dehiscence.
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What Eye Problems Result From Albinism
What Is Achromatopsia? - this condition, where cones in the eye do not work, leaving the rods to do all the work, means a marked lack of colour and detail vision. Nystagmus is one of the side-effects, but this is slightly different from a diagnosis of infantile nystagmus.
What is Albinism?
What is Nystagmus? - www.amitshah.in
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X-linked idiopathic infantile nystagmus associated...[Mol Vis. 2007] - PubMed Result
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Yahoo! Video search for 'nystagmus'
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